PODCAST

The Tight Lipped podcast is a public conversation about “private” pain. The first season of the Tight Lipped podcast examines how the history of hysteria, the politics of medical research funding, social pressure and norms, and public sexual discourse have kept people silent about vulvovaginal and pelvic pain for so long. Each episode features personal stories of those living with these conditions alongside insight and analysis from medical professionals, academics, journalists, and experts who study vulvovaginal healthcare through a medical, scientific, social, and cultural lens. 

Every day we receive messages from our listeners all over the world saying, “me too.” 

“Listening to this podcast felt like a weight being lifted off my shoulders. There is something about hearing another voice articulate what you’ve been experiencing that truly makes you feel less isolated.”

The Tight Lipped team is now in the process of visioning, storyboarding, and developing the second season of the podcast. “We’ve had to wait a heck of a long time, until today, for millennials to grow up and demand new openness with both sex and women’s health, to be able to publicly confront what only had been whispered about.” 


SEASONS ONE & TWO EPISODES


BONUS: Aguantando
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BONUS: Aguantando

Cualquier noche de la semana no es nada raro encontrarse a Gabriela perreando al ritmo de Bad Bunny. Ella ama bailar, pero hay una razón por la que está en la pista de baile: tiene que "soltar la pelvis". Hoy Gabriela está viviendo su mejor momento. Aunque hace poco tiempo no era todo color de rosas. Estaba atada por dolorosos síntomas urinarios que no comprendía aparte de estar estancada en una relación con un hombre que no era el compañero que ella necesitaba.

En este episodio, conoceremos como mediante su experiencia con el dolor pélvico crónico Gabriela transformó su relacion con las citas, el sexo y (aun más importante) con ella misma.

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Episode 12: Beyond the Books
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Episode 12: Beyond the Books

Over and over again we hear stories from patients with vulvovaginal and pelvic pain who have struggled for years to find care. These patients have been told things like “just drink a glass of wine” or “you must have repressed sexual trauma.” We wanted to find out, what are medical students and residents taught about these conditions? And why don’t most OB/GYNs know the steps to help?

In today’s episode, we’re getting a peek into another side of the conversation: what’s missing from medical education and training. We hear from medical providers and students who are working to close the gaps and we learn about Tight Lipped’s advocacy work, focused on ensuring that every OB/GYN residency program teaches about pain.

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Episode 11: Loving Through This
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Episode 11: Loving Through This

Jazzmine and Jordan have been together for almost a decade. They’ve built a beautiful and fulfilling life in Iowa and you could say that they’re the “perfect” couple. But, there’s one thing that most people don’t know about their relationship: they’ve never had penetrative sex. While Jazzmine used to keep this secret, now she and Jordan are ready to share how they navigate chronic vulvovaginal and pelvic pain together.

Even as recently as the 1960s, American courts were declaring that a marriage without regular penetrative sex was an invalid marriage. In today’s episode, we hear how Jazzmine and Jordan have worked to redefine intimacy in their relationship and resist social and historical narratives about marriage and sex.

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Episode 10: The DSM
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Episode 10: The DSM

In 1991, Marjorie Wantz made headlines when she died through physician-assisted suicide. She had suffered for years with chronic vulvovaginal and pelvic pain. Marjorie hoped that an autopsy would prove what she’d insisted all along: that her pain was real. But, in the aftermath of her death, the medical community painted Marjorie’s condition as psychological, and imaginary.

Why did doctors still not believe Marjorie Wantz even after she took her own life to stop the pain? In today’s episode, we’re exploring how and why vulvovaginal pain became understood as a psychological issue. We hear from Hannah Srajer, who researched the development and evolution of “vaginismus” as a diagnosis over the last 100 years.

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Episode 9: Holding It In
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Episode 9: Holding It In

On a typical weekday night, you can find Gabriela twerking to Bad Bunny. She loves to dance, but there’s another reason she’s out on the dance floor: to release her pelvic floor. Gabriela’s living her best life these days. Yet, not that long ago, things looked pretty bleak. She felt held back by painful urinary symptoms she didn’t understand, and stuck in a relationship with a man who wasn’t the partner she needed.

In today’s episode, we hear how Gabriela’s experience with chronic pelvic pain transformed her relationship to sex, dating, and (most importantly) herself.

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Episode 8: Power in Numbers
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Episode 8: Power in Numbers

In 1994, Phyllis Mate led a small, dedicated group of women to found the National Vulvodynia Association, the NVA. Their mission was to be the central destination for the most up to date resources and research on vulvodynia. The problem? There wasn’t any medical information on the condition. On today’s episode we learn how a small group of vulvodynia patients fought for research and solutions to a problem they were taught not to talk about..

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Episode 7: Why did y'all offer this to me?
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Episode 7: Why did y'all offer this to me?

After nearly a decade of ER visits and dismissal from doctors, Samantha Denae was finally diagnosed with endometriosis. But then, she needed to figure out how to treat it. Over and over again she was told to get a hysterectomy. Black patients like Samantha are much more likely to receive a hysterectomy than white patients. But, why is that? This is the second episode in our two-part series about how race and class influence endometriosis diagnosis and treatment. We learn about how centuries of sterilization abuse and medical racism ignited the fight for reproductive justice, which continues on today.

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Episode 6: The Career Woman's Disease
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Episode 6: The Career Woman's Disease

The myth that Black women don't develop endometriosis is almost a century old and yet it still persists to this day. Where did this idea come from? How did endometriosis come to be labeled the "career woman's disease"? And, why is it harder for Black patients, and working class patients, to get diagnosed? Today's episode is the first in a two-part series exploring how race and class influence endometriosis diagnosis and treatment. We learn about the story of the doctors who established this myth -- and one doctor who dedicated his life to debunking it.

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Episode 5: Embodied Knowledge
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Episode 5: Embodied Knowledge

In the late 1960s, it was difficult to access basic information about women's health. Jane, frustrated by her doctors' paternalistic attitude, decided to do more research about her own body so she could advocate for herself. With a group of activists in Boston, Jane and 11 others began taking matters into their own hands and went on to write the groundbreaking book “Our Bodies, Ourselves,” which redefined the women’s health movement. In today's episode, we explore how one group of women came together to build community, educate themselves, and change how we talk about and treat women's bodies.

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Episode 4: Did I Dream?
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Episode 4: Did I Dream?

What happens when a doctor's dismissal leads you to question your own sanity? This is what patient advocates call "medical gaslighting." Lara Parker knows all about the consequences of not being believed. She lives with pain all over her body. She's passed out from the pain multiple times. She's constantly nauseous, has horrible cramps, and has chronic vaginal and vulvar pain. But, after years of dismissal from doctors, Lara starts to wonder: Am I imagining it?

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Episode 3: A Broken Optimism
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Episode 3: A Broken Optimism

Sex hurts the first time, but then it gets better. Right? This is the message so many of us grew up with. We saw it in movies and heard it from friends. But what if sex isn’t supposed to hurt? How much pain is too much pain? When is pain “normal” and when does it require medical attention? These are questions that Maura, a teacher and dancer, has spent almost her whole life thinking about. In today's episode, we hear from Maura, and many others, about how and why they've spent years putting up with pain.

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Episode 2: The Trust Gap
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Episode 2: The Trust Gap

By the time Shelby was 22 years old, she'd seen not one, not two, not three, but twelve different doctors in search of a diagnosis. And this is not an uncommon experience for people with vaginismus, vulvodynia, and other vulvar pain conditions. In today’s episode, we’re taking a look inside the exam room to try to understand why so many people with vaginas that hurt have to seek out dozens of doctors before getting a diagnosis, let alone a treatment plan.

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Episode 1: Secrets
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Episode 1: Secrets

For as long as Noa can remember, penetrative sex -- actually any kind of penetration (tampons, pelvic exams, etc.) -- has been so painful it’s physically impossible. And, until very recently, she kept it secret from almost everyone she knew. Where and how do women like Noa learn to keep their pain secret?

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