Get Involved
Sign up to stay in the loop about upcoming events & opportunities, and we will reach out to you directly if we have plans to start a chapter near you in the future. We also encourage you to self-organize or host meet-ups in your city to build community. We are happy to publicize local events, just send us the info at info@tightlipped.org. We’re excited to welcome you to our community!
What's chronic vulvovaginal/pelvic pain?
We use this term to refer to a variety of conditions that cause vulvar burning, rawness, itching and pain; pain with insertion (sex, tampons, pelvic exams, etc), UTI-like symptoms, pain with urination, sitting, and tight pants. This includes conditions like vaginismus, vulvodynia, pelvic floor dysfunction and lichen sclerosus. (Find medical resources and information here).
What's Tight Lipped?
Tight Lipped is a grassroots movement by and for people with chronic vulvovaginal and pelvic pain. We fight for a world where these conditions are diagnosed correctly, treated effectively, and given compassionate care. You can check out our storytelling podcast and read our zine, Opening Up, here.